What is Skloot saying in regards to the role of ethics in medicine in our country?

In The Immortal Life of Henrietta Lacks, the author, Rebecca Skloot, shares the emotional story of a cancer patient who was denied the opportunity to give ethical informed consent for use of her own tissue in future scientific and medical experiments (HeLa cells created from her tumor). Through extensive research and interviews, Skloot gives the reader a rare perspective of how Henrietta Lacks and her family were misinformed and exploited because Lacks' biospecimens (tissue from her cancer) were eventually used for profit (HeLa cells are still sold today and widely used in scientific research), while the family received no benefits and continued to live in poverty. Therefore, the author shows the need for better ethics in medicine by improving patient understanding of and consent to tissue or specimen donation. Incidentally, this book had a major influence on US policy, which changed in favor of patient informed consent and protection of patients' rights in human research.
https://www.ama-assn.org/delivering-care/ethics/code-medical-ethics-consent-communication-decision-making

https://www.cancer.org/treatment/finding-and-paying-for-treatment/understanding-financial-and-legal-matters/informed-consent/what-is-informed-consent.html